As a patient association, we are involved in various projects. A number of projects have now been completed, the results of which can be seen in a comprehensive website.
We describe some of the projects below.
There are several treatment options for ITP. However, it remains difficult to determine which treatment option would best suit each patient. The ITP decision-making tool was created to enable the patient to make a good choice when making an appointment with the attending physician.
The decision-making tool explains in a simple way which treatments are available. The advantages and disadvantages are also discussed. There is also a questionnaire that you can complete to establish whether the information is clear and what choice might be best for you.
The decision-making tool was created by the Haga Hospital in The Hague. The Patient Association provided input from the patient's point of view.
Members can click here to view the promo code (opens in a new window). You will be prompted for a login.
Young people may have a chronic illness and as a result experience difficulties in completing their education. The Study Tool was developed to show that we can do more; i.e. helping more chronically ill young people to continue to learn.
The project 'Building Participation Together' is a project that is being carried out with an institutional subsidy awarded by the Ministry of Health, Welfare and Sport to patient and disability organisations. The Study Tool (ST) initiative forms part of this project. The Study Tool is a national initiative from which many students with a chronic illness or disability can benefit.
Unfortunately the Study Tool is no longer available.
The 'Building Participation Together' project is being carried out with an institutional subsidy awarded by the Ministry of Health, Welfare and Sport to patient and disability organisations. The Employment Inclusion Tool forms part of the project.
The Employment Inclusion Tool aims to support people with a chronic condition or physical disability to live as well as possible with their condition to keep their job or get into employment as much as possible.
Unfortunately the Employment Inclusion Tool is no longer available.