News

 
 

Promotion Sufia Amini

Date: 11 January 2023  -  Category: General
"Physician-researcher Sufia Amini received her Ph.D. on January 10th with her dissertation entitled "Moving towards a new era for patients with ITP." Sufia conducted research on the developments in treatment for ITP, ...

The ITP Podcast

Date: 15 December 2022  -  Category: General
If you have ITP, you may also experience other symptoms such as fatigue or side effects of medication. Or you may be told that you should avoid certain activities due to the risk of bleeding.In the new podcast series ...

Live! with ITP doctor videos

Date: 27 November 2022  -  Category: General
Four physicians respond to the stories of the young people, whose videos were released previously. Haematologists and ITP specialists Roger Schutgens, Elise Huisman, Monique Suijker and Jaap Jan Zwaginga (also members...

New developments

Date: 28 October 2022  -  Category: General
This month, Professor Roger Schutgens published a review article* on the treatment of chronic ITP. In it, he discusses the latest findings in the literature worldwide. His main conclusion is that in particular careful...

Live! with ITP young people videos

Date: 29 September 2022  -  Category: General
Brave! In the new video series Live! with ITP, which we made in collaboration with Novartis Netherlands, Marjolijn (16), Lorenzo (17), Sterre (19) and Lotje (24) candidly talk about the challenges they encounter. But ...

Doctoral degree Wobke van Dijk

Date: 09 September 2022  -  Category: General
Medical researcher Wobke van Dijk obtained her PhD doctorate on 20 September. In recent years, she has done a lot of research at the Van Creveldkliniek. Her research subjects included ITP and fatigue, ITP and the dent...

ITP brochure Sobi

Date: 08 September 2022  -  Category: General
Biopharmaceutical company Sobi has issued a nice, well-defined brochure that looks at the many aspects of ITP and gives ITP patients tools on how to discuss certain fears and/or worries with their doctor. Work and soc...

Youth Day

Date: 10 August 2022  -  Category: General
On 24 September, two young adults with ITP will organise a youth day for other young people with ITP!!This youth day is mainly about socialising and having fun. There will be ample room to talk with each other about t...

Dr Martin Schipperus

Date: 05 August 2022  -  Category: General
Dr Martin Schipperus has resigned from his position at the UMCG with effect from 1 June this year. However, he will remain attached to Sanquin and will continue his ITP research there, in collaboration with Rick Kapur...

Summer vacation is in sight.

Date: 07 July 2022  -  Category: General
When you travel, it is useful to have an emergency document with you that states what ITP is and what to do in case of an emergency. There is now an English letter on our website to take with you on a trip, stating w...

Translated website

Date: 01 June 2022  -  Category: General
As a patient association we want to inform as many people as possible about ITP and about how patients experience their ITP. That is why we have had our website translated into English (thanks to Sobi Nederland who ...

PhD degree for David Schmidt

Date: 17 April 2022  -  Category: General
Researcher David Schmidt, who gave a very informative presentation on ITP in children during our contact day at Sanquin in October 2017, will receive his PhD (Doctor of Philosophy) research degree today, 7 April 2022!...

Webinar ITP and UWV

Date: 22 February 2022  -  Category: General
ITP Patients’ Association is in regular contact with UWV (public employee insurance agency in the Netherlands). This concerns, among other things: -The way the agency operates;-The way in which the amount of the bene...

ITP Patient Day Belgium

Date: 09 February 2022  -  Category: General
On Saturday the 23rd of April, Novartis Belgium will organize an ITP Patient Day for Belgian ITP patients. This event is an opportunity for people to meet each other and share their personal ITP stories and experience...

Study of menstruation of women with chronic ITP

Date: 04 February 2022  -  Category: General
Physician-scientist Wobke van Dijk MSc and Prof. Roger Schutgens  MD PhD (Van Creveldkliniek) are working on a study into menstruation of women with chronic ITP. The results of this study will increase knowledge on an...

ITP and seeing a dentist or oral surgeon

Date: 02 February 2022  -  Category: General
With a low platelet count and gums that bleed easily when brushing your teeth, having dental work done by a dentist, oral surgeon, or dental hygienist can be tricky.  What if there’s a bleed during the treatment? Or ...
 

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